Pericarditis Information

Disclaimer: This page is for informational purposes only. I am not a medical professional, nor affiliated with a medical facility. I do not promote any specific treatment for pericardial diseases. 

pericarditis zebras

My Story

As a travel writer, I spend a great deal of time researching things. As my battle with chronic relapsing pericarditis continued over most of a decade, I gathered a great deal of research and felt this was a good place to share the best of it. If there is one thing I have discovered, it is that while all pericarditis sufferers have some things in common, we are all on our own journey. One of my goals here is to help medical professionals begin to see those differences and treat us as individuals, not as “typical” cases. 

Please feel free to reach out to me on Facebook if you have additional resources you would like to share here. Oh, and if you are interested in what I do when I’m not laying on the couch trying to will the wrapper around my heart to heal, start here

     I wish you wellness fellow zebras!

Whether your journey to diagnosis has been long or short, it still may come with very little information from your provider. How long will it last? Are there activity restrictions? What medicines should I be taking? 

The links below will take you to basic patient information from some of the most reliable sources on the Internet. 

General Information on Pericardial Disease

American Heart Association
http://www.heart.org/en/health-topics/pericarditis/what-is-pericarditis

Cleveland Clinic
https://my.clevelandclinic.org/health/diseases/17353-pericarditis

https://my.clevelandclinic.org/health/treatments/17352-pericardiectomy

Cleveland Clinic Webchats
https://my.clevelandclinic.org/departments/heart/patient-education/webchats/pericardial-conditions

Medline Plus
https://medlineplus.gov/ency/article/000182.htm

https://medlineplus.gov/ency/article/001103.htm

Merck Manual
https://www.merckmanuals.com/home/heart-and-blood-vessel-disorders/pericardial-disease-and-myocarditis/overview-of-pericardial-disease

Better Health Channel
https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/pericarditis

National Heart, Lung, and Blood Institute
https://www.nhlbi.nih.gov/health-topics/heart-inflammation

Up to Date
https://www.uptodate.com/contents/pericarditis-beyond-the-basics

Heart and Anatomy
https://training.seer.cancer.gov/anatomy/cardiovascular/heart/structure.html

If you are a patient, once you know the basics about our disease, you may find that knowledge gleaned from professional papers can help further inform your recovery plan. You may even want to print some of these for your doctor if you find that your treatment plan varies greatly from what is favored worldwide by top researchers.

Doctors, here is most of what you need to get a handle on everything from garden-variety one-off cases to the complicated chronic zebras. But before you dig in, we’d love it if you read this:
https://medium.com/@melindacrow/dear-doctor-what-pericarditis-patients-wish-you-knew-e7d84cb6af27

Dr. Klein’s “Complicated Pericarditis”
https://www.sciencedirect.com/science/article/pii/S0735109716353207

General Diagnosis and Treatment Guidelines

http://www.clevelandclinicmeded.com/medicalpubs/ccjm/may2007/saltzman.htm 

https://www.uptodate.com/contents/acute-pericarditis-treatment-and-prognosis

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3011134/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5709055/

https://www.merckmanuals.com/professional/cardiovascular-disorders/myocarditis-and-pericarditis/pericarditis

https://www.aafp.org/afp/2002/1101/p1695.html

http://www.anmco.it/uploads/u_cms/media/2016/1/780cacd4d8807758ecce60768d5c843e.pdf

https://www.acc.org/latest-in-cardiology/ten-points-to-remember/2015/10/30/12/01/2015-esc-guidelines-for-the-diagnosis-and-management-of-pericardial-diseases

https://academic.oup.com/eurheartj/article/36/42/2921/2293375 

https://www.ahajournals.org/doi/10.1161/CIRCULATIONAHA.111.066365

https://emedicine.medscape.com/article/156951-treatment

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2878263/

https://www.escardio.org/Journals/E-Journal-of-Cardiology-Practice/Volume-15/Management-of-acute-pericarditis-treatment-and-follow-up

https://www.uspharmacist.com/article/acute-pericarditis-treatment-update-on-colchicine

Recurrent, Chronic or Constrictive Cases

https://www.dovepress.com/recurrent-pericarditis–current-challenges-and-future-prospects-peer-reviewed-fulltext-article-RRCC

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5408622/ 

https://www.cancertherapyadvisor.com/hospital-medicine/constrictive-pericarditis/article/599144/

https://www.acc.org/latest-in-cardiology/articles/2015/09/09/12/19/transient-constrictive-pericarditis

https://www.ahajournals.org/doi/10.1161/01.CIR.0000019421.07529.C5

Pregnancy Concerns

https://journals.sagepub.com/doi/pdf/10.2217/WHE.12.9 

Cancer Connection

https://www.medscape.com/viewarticle/882945

Pericardiectomy

https://www.acc.org/latest-in-cardiology/articles/2015/09/09/12/19/transient-constrictive-pericarditis

https://www.acc.org/latest-in-cardiology/articles/2018/04/11/11/01/robotic-assisted-pericardiectomy-for-constrictive-pericarditis

https://www.annalsthoracicsurgery.org/article/S0003-4975(12)01046-6/fulltext

 

 

There are mixed thoughts on changing your diet to improve the outcome of pericarditis. The links below are a starting point for healthy eating plans that may help in the long run. 

DASH Diet

https://www.nhlbi.nih.gov/health-topics/dash-eating-plan

https://www.healthline.com/nutrition/dash-diet

 

Mediterranean Diet

https://www.healthline.com/nutrition/mediterranean-diet-meal-plan

 

Anti-inflammatory Diet

https://www.verywellhealth.com/anti-inflammatory-diet-88752

https://www.healthline.com/nutrition/anti-inflammatory-diet-101

I once had a doctor tell me to think of my inflamed heart like a sprained ankle or knee. You would not hesitate to let that rest, because every step would increase the inflammation and pain in your joint. Exercise increases the rate at which your heart beats, and therefore the number of times per minute that your pericardium is irritated. You may or may not feel pain with each beat like you would with walking on a sprain, but over the course of a day, the irritation builds, leaving you with increased pain tomorrow. 

You have probably learned by now that many of the experts recommend keeping your heart rate below 100 while still symptomatic, but if physical activity is an important part of your life, you may find these alternatives to cardio-centric exercise fit into your lifestyle as you begin to recover. 

Chair Yoga

https://www.healthline.com/health/fitness-exercise/chair-yoga-for-seniors#1

https://www.doyouyoga.com/6-benefits-of-chair-yoga-8-poses-to-get-you-started/

Tai chi

https://www.mayoclinic.org/healthy-lifestyle/stress-management/in-depth/tai-chi/art-20045184

Slow weight training

https://www.webmd.com/men/features/want-more-strength-slow-down#1

Sometimes all you need is to hear other people’s stories to put your mind at ease. That is what you will find in these two FB groups. 

Physicians welcome! We hope you might learn a few things from reading our posts. 

Facebook Support Groups

https://www.facebook.com/groups/pericarditis/

For those who are contemplating or have had pericardiectomy surgery: 
https://www.facebook.com/groups/1755692848029608/

Want to get updates when new resources are added to this page?